Scientific Data Release and Genome Commons

 

Principle investigator:  Jorge Contreras

The multinational effort to sequence the human genome generated vast quantities of data about the genetic make-up of humans and other organisms. But, in some respects, even more remarkable than the impressive quantity of data generated by the human genome project (HGP) is the speed at which that data has been released to the public. At a 1996 summit in Bermuda, leaders of the scientific community agreed on a groundbreaking set of principles requiring that all DNA sequence data be released in publicly-accessible databases within twenty-four hours after generation. These “Bermuda Principles” represent a significant achievement of private ordering in shaping the practices of an entire industry and have established rapid pre-publication data release as the norm in genomics and other fields. We are studying the effect of scientific data release in genomics and other scientific disciplines, as well as legal structures and intellectual property regimes that are best-suited to optimize the public use and dissemination of scientific data.


Publications

Prof. Contreras’ Comments on the Draft NIH Genomic Data Sharing Policy. November 19, 2013.
See also the NIH Request for Public Comments.
Comments to White House OSTP on Public Access to Digital Data Resulting from Federally Funded Scientific Research, Jorge Contreras, Jan 12, 2012.
Comments to White House OSTP on Public Access to Digital Data Resulting from Federally Funded Scientific Research, Michael Carroll and Meredith Jacob, Jan 12, 2012.
Bermuda’s Legacy: Policy, Patents and the Design of the Genome Commons. Minnesota Journal of Law, Science & Technology Jorge Contreras, 2011.
Data Sharing, Latency Variables and the Science Commons. Berkeley Technology Law Journal, Jorge Contreras, 2010.
Prepublication Data Release, Latency, and Genome Commons. Science. Jorge L. Contreras, 2010.
Benefits and Best Practices of Rapid Pre-Publication Data Release Toronto 2009 Data Release Workshop Authors. 2009.